Petition: Change Policy to Allow Pediatric Transplants of Adult Lungs Based on Medical Necessity’ on Change.org

Sarah Murnaghan – www.philly.com

Little Sarah Murnaghan has end stage Cystic Fibrosis. I received this email from my sister in law and hope that all our followers will read it seriously and do what they can to help change the policy to allow pediatric transplants of adult lungs based on medical necessity. You may have seen this story in the news and not known how to help. Here is the information that will direct you how to take a few moments to help implement change.

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If you can, please send the suggested letter below to help save little Sarah’s life.  Time is of the essence.  I may have mentioned before that my co-worker, Sharon, Sarah’s aunt, lost her young son in a matter of months to a rare disease a few years back and now her sister and brother-in-law are in the same painful state with their beautiful young daughter.  So incredibly sad.  These two women are some of the most unselfish and amazing women I can think of.  Between the two of them have adopted 5 very impoverished kids from other countries and are opening a school for orphaned children.  There has been a media blitz to bring light to this transplant issue.  Pretty amazing to get 70 thousand signatures on a petition on 3 days.

Here’s one of the clips from CNN:

http://www.cnn.com/video/#/video/bestoftv/2013/05/29/exp-nr-lungtransplant.cnn?iref=allsearch

Of course this is a personal choice, but if you feel like you’d like to help, please send the letter below.  Please also feel free to share this email.

Thank you.

From: Family and Friends of Sarah Murnaghan
Sent: Thursday, May 30, 2013 10:21 AM
Subject: Update about ‘OPTN/UNOS: Change Policy to Allow Pediatric Transplants of Adult Lungs Based on Medical Necessity’ on Change.org

We need to act quickly to get this policy changed. Please email HHS Secretary Kathleen Sebelius at kathleen.sebelius@hhs.gov. She oversees OPTN/UNOS. You can use the below email to reach out to her. Thank you for your continued support as we work to save Sarah!

Dear Madam Secretary:

The refusal of the Organ Procurement and Transplantation Network to permit 10-year-old Sarah Murnaghan to receive an adult donor lung is tragically unfair.

I write to you today to join Sarah’s more than 70,000 family and friends who have signed www.change.org/savesarah (in just 3 days!) requesting that you convene an immediate meeting of the Board or its Executive Committee to address this situation and act to give Sarah a chance at life and an adult lung from the next available donor.

Time is truly of the essence for Sarah, so please act now. Thank you.